National Alliance on Mental Illness
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National Institute of Mental Health (NIMH) Research Funding
NAMIís Position (Taken Directly from the NAMI Policy Platform)
Neuroscience research, behavioral research, pharmaceutical research, clinical research, as well as service system research are some of the initiatives supported by NAMI. To this end, NAMI endorses the Presidential proclamation of the 1990s as the Decade of the Brain, which calls upon Congress and the Executive Branch to focus more attention on research, treatment, education, and rehabilitation related to brain disorders and to appropriate funds sufficient to make that promise a reality. NAMI expects the rigor and pace of the field of services research to be equal to that of biomedical research.
Understanding The Issue:
NIMH is the principal federal agency in charge of funding biomedical research into brain disorders. Through its $978.4 million budget, NIMH supports and conducts an integrated program of basic and clinical research and research training in biology, neuroscience, and epidemiology. Research initiatives include programs in major brain disorders such as schizophrenia, major depression, bipolar disorder, panic disorder, and obsessive-compulsive disorder. Over the past four years, NIMH has received important increases in funding through the bipartisan leadership of Representatives John Edward Porter (R-IL) and David Obey (D-WI) and Senators Arlen Specter (R-PA) and Tom Harkin (D-IA). The agency's FY 2000 budget was increased by more than 14 percent, up to its current level of $978.4 million. This increase continues the bipartisan goal of doubling the federal biomedical research budget (including that of NIMH) by the year 2005.
However, research on serious mental illnesses remains markedly underfunded, when you consider either its cost to society or the disability it causes. The World Bank, the World Health Organization, and the Harvard School of Public Health recently published an extensive study The Global Burden of Disease, which examined the impact of a wide range of disease on the loss of years of healthy life.
Several key findings deserve emphasis:
A recent study in the New England Journal of Medicine concludes that, compared with a range of other disorders, mental illnesses are among the conditions that are underfunded by the NIH in relation
to their burden on society. NIH funding priorities should, of course, also be influenced by scientific promise. There is little issue about the promise of research on the brain and mental illnesses: Nobel Prize laureates have given telling testimony before Congress ranking research on the brain and brain disorders as top scientific priorities.
NAMI has actively promoted a greater investment in research on serious mental illnesses, ranging from basic neurosciences to services research. NAMI has pressed for a series of National Plans to guide the development of these research programs and has monitored the NIMH grant portfolio over the past decade. Although greater attention has been paid to research on serious mental illnesses, a significant part of the research funded by NIMH has little or no relevance to these illnesses. A recent review of 1997 NIMH grants, conducted by the Stanley Foundation and the NAMI Research Institute, raises significant questions about research priorities within NIMH, about the low level of funding of clinical research on these disorders, and about the large number of studies judged irrelevant to serious mental illnesses.
The current NIMH Director Steve Hyman has taken major steps to improve the focus of the institute. Since 1997, NIMH has funded large clinical research contracts addressing treatment issues in schizophrenia and bipolar disorder and developed a program to translate basic neuroscience findings into ideas about the causes of and treatments for serious mental illnesses. NAMI needs to help assure that this increasing focus on serious mental illnesses will continue. Because of the impact of serious mental illnesses on society, on individuals, and on their families, and because of the long-standing underfunding of research on these illnesses, NAMI advocates that all increases in NIMH funding be directed to research relevant to serious mental illnesses.
Some groups have claimed that NAMIís focus on serious mental illnesses ignores individuals with depression or eating disorders or PTSD, or ignores the needs of children. This is simply wrong. Serious mental illnesses include all those that have a substantial impact on the individual, the family, the society. Serious mental illnesses include both episodic illnesses, such as depression, and persistent illnesses, such as autism and schizophrenia. We believe this focus on serious mental illnesses brings together sound science, sound public policy, and sound advocacy.
NAMI's Advocacy Goals and Strategies
Federal funding of biomedical research should be substantially increased to ensure that there are adequate resources for promising biomedical research into brain disorders and genetics and support for initiatives focused on neural receptors, receptor subtypes, and modulators. NAMI supports the goal of doubling the NIH budget within 5 years.
Greater funding should be provided to institutes and to diseases that have traditionally been underfunded compared with the impact of the diseases on our society. NIMH specifically should receive an above average increase.
Congress should direct the institute to use all new funds to expand research relevant to serious mental illnesses in both children and adults, including:
To help assure that the Institute is responding to priorities expressed by Congress and our citizenry, NIMH should be required to issue an annual report to Congress regarding the allocation of its resources to severe mental illnesses in general and to clinical and treatment-related research on severe mental illnesses in particular.
For more information about NAMIís activities on this issue, please call Andrew Sperling at 703-516-7222 or Rex Cowdry, M.D. at 703-312-7887. All media representatives, please call NAMIís communications staff at 703/516-7963.