National Alliance on Mental Illness
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Schizophrenia Survey: Acknowledgements
We would like to thank the many individuals living with schizophrenia and caregivers who participated in the schizophrenia survey. Their willingness to share their stories and experiences has been inspiring and insightful.
Our gratitude extends to the members of the Advisory Committee who contributed countless hours developing the scope of the survey and helping to integrate the findings to an insightful outcome. Their expertise was informative and their commitment to the report invaluable.
The survey was designed, administered, and results evaluated by the professional team at Harris Interactive. We thank them for contributing their expertise to the initiative.
Along with NAMI staff who served on the Advisory Committee, additional NAMI staff who contributed to the initiative include Charles Harmon, Director of External Relations; Ronald Honberg, J.D., Director of Policy and Legal Affairs; Angela Kimball, Director of State Policy; Don Lamm, Director of Web Services; Dan Waggoner, NAMI Intern.
NAMI Advisory Committee members:
Loren Booda has lived with schizoaffective disorder for 30 years. He works as a NAMI HelpLine information specialist and has volunteered as a NAMI support group facilitator. Mr. Booda has also been recognized for volunteerism in his regional park system and for his volunteer activities on behalf of a local nursing home. He has an M.S. in Physics from George Mason University.
Ken Duckworth, M.D., is a clinical and research psychiatrist and assistant professor at Harvard University Medical School, and serves as Medical Director for NAMI. Dr. Duckworth has extensive experience serving as the acting commissioner and medical director of Massachusetts Department of Mental Health.
Elizabeth R. Edgar, M.S.S.W., is a Senior Policy Analyst at NAMI. Ms. Edgar has worked in the mental health field since 1975 as a community mental health agency service provider and manager, state department of mental health community services and housing administrator, and national technical assistance project director. Further understanding of treatment needs and the family perspective comes from her relationship with her 33 year-old daughter who is recovering from a severe mental illness.
Michael Fitzpatrick, M.S.W., is Executive Director of NAMI. He has nearly 35 years of experience in the public mental health sector and served as the House Chair of the Health and Human Services Committee in the Maine State Legislature from 1994-1996. Mr. Fitzpatrick has served on numerous community, government and non-profit boards and expert panels. He presently serves as the Chair of the Campaign for Mental Health Reform and serves on the Board of REACH (Resource for Advancing Children's Health) Institute. Mr. Fitzpatrick has a master's degree in social work from Boston College.
Katrina Gay is Director of Communications for NAMI, where she oversees the organization's strategic and operational communications initiatives. Her career has encompassed a variety of communications and public relations specialties. Ms. Gay serves on the advisory board of Esperanza magazine. She was educated at Texas A&M University and the University of Houston, where she studied economics.
Stephen M. Goldfinger, M.D., is a community psychiatrist whose career has focused on the treatment and rehabilitation of the most seriously disabled psychiatric patients. He is currently a Professor and Chair of Psychiatry and Behavioral Sciences at the State University of New York, Downstate Medical Center, Brooklyn. Dr. Goldfinger trained at Harvard College, Yale Medical School, and completed his psychiatric residency at the University of California, San Francisco/Mt. Zion Hospital.
Anand Pandya, M.D., is the Director of Inpatient Psychiatry at Cedars-Sinai Medical Center. He is a nationally recognized expert in disaster psychiatry, having co-founded the non-profit Disaster Psychiatry Outreach. He received the Kenneth Johnson Memorial Book Award for Disaster Psychiatry: Intervening when Nightmares Come True. He serves as President of NAMI. He is also active in the American Psychiatric Association where he has served on the Scientific Program Committee for many years.
Charles Schulz, M.D., is the Hastings Endowed Chair and Head of the Department of Psychiatry at the University of Minnesota. He received his medical degree and psychiatric residency training from the University of California, Los Angeles. He became a clinical associate in the Neuropsychopharmacology Section of the National Institute of Mental Health (NIMH) following his residency. At the University of Minnesota, Dr. Schulz has continued his work in brain imaging studies of both people with schizophrenia and borderline personality disorder as well as in treatment studies.
Carol Tamminga, M.D., is the Communities Foundation of Texas Chair in Psychiatry at the University of Texas Southwest (UTSW), the Vice Chair for Research and the Chief of the Department of Psychiatry at UTSW Medical School. In her research role, Dr. Tamminga's efforts strive to examine and understand the mechanisms underlying schizophrenia, especially its most prominent symptoms, psychosis and memory dysfunction, in order to build rational treatments for the illness.
Analysis and Recommendations Authors:
In addition to the writing contributions of Katrina Gay and Ken Duckworth, M.D., we acknowledge:
Laudan Aron (Laudy), who is the Director of Senior Policy Research for NAMI where she oversees all of NAMI's research activities, including the bi-annual report to the nation on public mental health service systems, Grading the States. Prior to joining NAMI in November 2007, Ms. Aron was a Senior Research Associate with the Urban Institute in Washington, D.C., and has also conducted national program evaluations, survey designs, data analyses, and reviews of the literature for many federal agencies and foundations.
Bob Carolla, J.D., the editor of this report, who is the Director of Media Relations for NAMI. A graduate of Boston University Law School, where he was topics editor of the American Journal of Law and Medicine, Mr. Carolla served ten years as a senior legislative assistant in the U.S. Senate. He is on the editorial board of Bp Magazine, which serves people with bipolar disorder and their families.
Christine Lehman, who is a research analyst and science writer with 15 years of experience in the analysis and communication of health research, with a focus on public and mental health.
This project was made possible with support from AstraZeneca, Solvay, and Wyeth.
Cover design ~ Landforddesign | Report design ~ Cindy Stone Design