Daughters and Sons
Resources on the World Wide Web (Chapter 8 of NAMI's IRB Training Guide)Bioethics Education Sites
1)http://www.cwru.edu/affil/wwwethics/index.html - Online Ethics Center for Engineering and Science maintained by Case Western Reserve University.
2)http://www.princeton.edu/~bioethic - Princeton University Bioethics Forum: an excellent site containing links to several educational resources, bioethics law sites, and web sites on specific issues in bioethics.
3))http://bioethics.georgetown.edu - Bioethics Research Library at Georgetown University [part of the Kennedy Institute of Ethics]
4)http://www.med.upenn.edu/~bioethic/library - Virtual Library at the Center for Bioethics at the University of Pennsylvania.
5)http://ethics.acusd.edu - Applied Ethics and Ethical Theory: an excellent site for ethics students maintained by the University of San Diego.
6)http://www.medweb.emory.edu - A comprehensive research site maintained by Emory University.
7)http://www.ethics.ubc.ca/resources/biomed/eth-inst.html - An excellent site with links to over 100 bioethics institutes, programs of study, and health care organizations; site is maintained by the Centre for Applied Ethics at the University of British Columbia.
IRB and Human Subjects Research Sites
1)http://www.mcwirb.org - the MCWIRB Discussion Forum: a form sponsored by the Medical College of Wisconsin that promotes the exchange of ethical, regulatory, and policy concerns of human subjects research.
2)http://www.aamc.org/research/primr/start.htm - the homepage for Public Responsibility in Medicine and Research (PRIM&R): a national organization dedicated to providing a multidisciplinary forum for addressing biomedical and bioethical issues.
3)http://www.umn.edu/subjects/humans.htm - University of Minnesota Research Subjects' Protection Programs: contains the 1. Protecting Human Subjects Guide and 2. Multiple Project Assurance of Compliance with DHHS Regulation for Protection of Human Research Subjects.
4)http://itssrv1.ucsf.edu/ora/chr/index.htm - UCSF Committee on Human Research: contains policies and procedures, national and international guidelines, and links to several IRB Web sites.
5)http://www.med.umich.edu/irbmed/ - the Medical School IRB of the University of Michigan: this site contains extensive links to human subjects research pages, federal regulatory policies, and key ethics source documents.
6)http://www.copernicus.com - this is an Independent IRB located in North Carolina: site contains several interesting links to industry and organizational sites.
1)http://www.nlm.nih.gov/ - The National Library of Medicine: contains several search engines including PubMed, MEDLINE, and Grateful Med.
2)http://www.nih.gov/grants/oprr/humansubjects/ - Office for Protection from Research Risk (OPRR).
3)http://www.nlm.nih.gov/pubs/cbm/hum_exp.html#260 - a comprehensive bibliography entitled Ethical Issues in Research Involving Human Participants that includes over 4,650 citations; also includes other issues in bioethics.
4)http://helix.nih.gov:8001/ohsr/ - Office of Human Subjects Research (OHSR): includes the Department of Health and Human Services regulations for the protection of human subjects; also contains text of Belmont Report.
5)http://www.nhgri.nih.gov/ELSI - Ethical, Legal, and Social Implications Research Program (ELSI) of the National Human Genome Research Institute.
6)http://www.bioethics.gov - The National Bioethics Advisory Commision
7)http:// www.os.dhhs.gov/phs/ori/ori_home.html - The Office of Researh Integrity (ORI) of the Department of Health and Human Services.
8)http://www.fda.gov - the Food and Drug Administration.