NAMI - National Alliance on Mental Illness Home | About NAMI | Contact Us | En Espanol  | Donate  
  Advanced Search  

Sign In
Register and Join
What's New
State & Local NAMIs
Advocate Magazine
NAMI Newsroom
NAMI Store
National Convention
Special Needs Estate Planning
NAMI Travel

 About Research

Print this page
Graphic Site
Log Out
 | Print this page | 

Protection of Human Subjects in Research

NAMI’s Advocacy Goals and Strategies

NAMI seeks to strengthen the true partnership between consumers and families on the one hand, and researchers, on the other, by:

  • Advocating for regulation and/or legislation that will put into practice NAMI’s policies.
  • Developing an IRB training program for consumers and families and an informed consent video to be widely disseminated to all researchers and potential subjects in research.
  • Working with NIMH and the FDA to enhance scrutiny and protections involved in research involving medication discontinuation/delay and symptom challenge; and
  • Researching the views of consumers and family members as they are involved in research and the impact of different policies and practices on consumer experience in research.

For more information about NAMI’s activities on this issue, please call Laura Lee Hall, Ph.D., at 703-516-7107 or Ron Honberg at 703-524-7600.

Back to Research








 | Print this page | 


Support NAMI to help millions of Americans who face mental illness every day.

Donate today

Speak Out

Inspire others with your message of hope. Show others they are not alone.

Share your story

Get Involved

Become an advocate. Register on to keep up with NAMI news and events.

Join NAMI Today
Home  |  myNAMI  |  About NAMI  |  Contact Us  |  Jobs  |  SiteMap

Copyright © 1996 - 2011 NAMI. All Rights Reserved.