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Understanding the Issue:

Why a concern with Privacy of Medical Records?
Brief description explaining the concern with confidentiality and medical records.

Proposed Federal Medical Privacy Standards (HIPPA)
Explanation of what the Health Insurance Portability and Accountability Act of 1992 (HIPAA) mandated.

NAMI's Position on the Issue:

Confidentiality and Access to Medical Records - WHERE WE STAND
NAMI acknowledges the dramatically changed environment of data linkage and integration and believes that national standards should be adopted for maintaining the privacy and confidentiality of individually identifiable medical records.

Take Action!

Contact Your Representatives about Confidentiality
Use our online advocacy tool to send a letter to your congressional representatives right now and make your voice heard on this issue. Use our suggested text or compose a letter of your own.

Sign Up for E-News Alerts
Keep up with the latest developments on this issue by subscribing to NAMI E-News, our free action alert newsletter.

Other Resources:

NAMI Letter to The Honorable Tommy G. Thompson Regarding the Final Privacy Rule, April 8, 2001
A letter from NAMI to the Secretary of Health and Human Services arguing that there be no weakening of the final privacy rule as issued by the Clinton Administration.

NAMI Submits Comments on Department of Health and Human Services Medical Records Privacy Regulations
Comments regarding proposed federal standards for protecting the privacy of individually identifiable health information under the Health Insurance Portability and Accountability Act of 1996 (HIPAA).

American Psychiatric Association
Statement on legislating medical records privacy, “Principles for Medical Records Privacy Legislation.”

Bazelon Center for Mental Health Law
Advocates for the privacy rights of people with mental illness.

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